In my web browsing, I ran across Marcel’s Way. Its a very interesting idea and organization that’s sole purpose is to support mitochondrial patients and their families in New Hampshire.
Some of the interesting things they do are: family vouchers for $5 when a child/patient has a metabolic or mitochondrial appointment at the hospital or if they are admitted to the hospital; grants ranging from $100 to $1000 to help families pay for medical equipment or other items to improve the life of their mito child which are not covered by insurance or other means; and this coming Saturday, May 9th, they are holding a walk-run event to raise money for their organization.
If you live in New Hampshire and you have a mito kid in your family, you should really check this out!
Wouldn’t it be great if we could get organizations like this in all the states or in different areas of the country? Maybe even the local UMDF chapters can look into doing some of these programs. Its the little things that help out dealing with the day to day of mitochondrial disease.